Last week my great nephew, Ward, was diagnosed with a Wilms Tumor. He is one and a half years old and the picture of health, except that this malignant mass is growing in and around his right kidney. Instead of celebrating Christmas at home he will be recovering from surgery. The whole right kidney will be removed. He will be given time to recover and then proceed to the chemotherapy part of this treatment plan.
As part of the extended family I am devastated by this news. This little sweet lion will face challenges that most of us never have to face, especially at this young age. This young and thriving family will face many challenges that they never expected to have to face. This is their baby and their love.
When I first spoke with my niece, we had a long and struggling talk. Why us?, was the question that she and her husband asked when presented with the diagnosis. The next question they asked was, Why not us? It is a question to ask, even in the most difficult of times. When things are going wonderfully in our lives we don’t ask the “why us” question. When the proverbial “*#*” hits the fan, often this question is the one that gets asked. Why Us?
Why not us? This is life and none of us are immune to the bad stuff that comes down. What we do with this question can reflect who we are. For my niece and her husband, they have answered the question and they are coming up fighting. More than anything else, they understand that they need to be the strong advocates for their baby. He is too young to take this on himself and this is what parents do. They also know that it is time to call in favors. Forget the stoicism.
Mom and Dad are already setting boundaries. They have asked that no one give them their worse cancer story. Why we humans do this, I am not sure. I heard many when I was going through treatment for breast cancer. Below I have posted a link to the Caring Bridge website that has been set up for Ward. If you contact them there, give them all the positive stuff you can.
The extended family is asking this same question. Why Us? Well, Why Not Us? How we confront adversity, shows our mettle. This large extended family is rounding up the wagons. My sister (Ward’s grandmother) has already made the two day drive to be with them through surgery and beyond. The rest of us, no matter the distance, are supporting, loving and doing what we can to let this family know they are loved and supported and will never be in need.
They have a large, strong community behind them. Trip is a pastor and Brittany is a Youth Minister. Wow, two whole churches of people who will love them and support them. If only the rest of us could have that many behind us. They are loved by their church communities. If you ever met them, you would understand why. They are two delightful and engaged pastors, loving friends, who share a great joy in life, even when the worse happens. And during doubt and uncertainty this background will hold them together and make them stronger, as individuals, as a couple and as parents.
If you want to follow this child in the months ahead, the parents have set up a Caring Bridge site for Ward. The following link will take you to the web site. Ward Porch-Caring Bridge You do need to sign up to receive updates. The site will not sell your email address. This site is set up, so that one can communicate with the well wishers and supporters without having to tell the story again and again.
I have also added a Caring Bridge Link to the left side of this blog. It is easy to click on that link, whenever you are visiting this page.
Please send prayers to this family. Love them and hold them close, whatever that means to you. All those good thoughts will give more love to them as they walk through this hard time.
We’re Just Walking Each Other Home.
Love and prayers for this family from a survivor. Blessings and prayers.
So sorry to hear about your nephew. Will keep him & his family in my prayers.
Poor little cutie. So glad he and the parents have a lot of support. Best wishes to all the family.
Thanks Janet for your kind and thoughtful words. The surgery is scheduled for W so we are in the wait pattern. I can see the tumor has pushed his rib cage up and his breathing is louder but his little spirit is amazing. We are busy keeping up with him. Brittany and Trip are trying to be normal but the worry gets to all of us. Sleepless nights are the worst. I will keep you updated.
I’m so sorry to hear about your nephew.
My baby brother lost his kidney before he was two years old.
He’s now 43, a dad, and doing well. A different scenario, but he spent months in the hospital and it was traumatic and sorrowful for our family.
I have an idea of what your family is going through and wanted to reach out, wish your family the very best. Fortunately hospitals have evolved and treat families and child patients better. I hope your family gets the support and the information they need.
Time is a wonderful healing tonic, but of little consolation when you’re in the thick of it.
Much love and best wishes for you and your family.