Ward Revisited

Flight 93 National Memorial

 

 

 

 

 

 

 

I am on my way west. I have been traveling west, though Pennsylvania and Ohio for a week. It has been wonderful to meander west without too much hurry. I pushed east last March to arrive in the Columbus area to help my niece, Brittany and her husband, Trip with their son, my great nephew-Ward. On this westward journey, I have the pleasure of stopping and seeing all kinds of interesting places, including my niece and her family, once again.

Ward is still in active treatment for childhood cancer. The good news is, he has one more chemotherapy treatment, next Friday. At the end of that visit he gets to ring the bell at Nationwide Children’s Hospital, marking the end of this phase of his treatment. Whew, I believe we will be happy to see this phase of treatment end.

Dad & Ward

Throughout treatment Ward has remained a rambunctious and active toddler. He will celebrate his second birthday in early June. Since I saw him in March he has grown and his hair has become fairer. He is putting his words together a little more. He remains an absolutely charming young boy.

It has been interesting to revisit with this part of my family again. Brittany and Trip continue to support each other and Ward. I appreciate their honesty in dealing with a most difficult situation.

Next month Ward has surgery to remove his port. Quarterly CT scans will continue to be apart of their life for many years. Now this might sound routine yet I know how much this will create stress, with each scan for years to come. they will hold their breath until the results come back. Ward on the other hand will continue to grow as a strong, young boy should. He will not hold his breath, we will all do that for him.

He has a most loving and supportive family around him. My sister, Ruth and her husband, Joe now live in two states. During the warmer months they will be in Ohio. They have bought a condo in a town near this young family. They are here to babysit and help in whatever way they can. Ward will return to day care and pre-school, part time, in the fall and will return to full time in the New Year. Ruth and Joe will remain in Ohio until he returns to full time. They also have a home in northern Florida and will probably be glad to see it when the snow arrives in their Ohio home.

I am glad this family has welcomed me with such grace and loving, open arms. I know it will be quite a while until I see all my family again. The west is calling and I must go. It helps me to travel and explore knowing I am loved and supported by all of my families. Who are these families that I speak of?

Tomorrow I will leave here and begin first to travel north to the south shore of Lake Erie, visit with a long time friend of mine in northern Indianna, mid-week and then head west.

Today I am feeling especially thankful and grateful for my family and the time I have had to visit with them. Now it is time to continue my adventure-Life.

Getting ready to move on, Miss Elsie and me.

On the Move, a Family Visit & Cancer

After a long and somewhat grueling drive across two thirds of the country, I made it to Ohio two weeks past. I found the drive grueling because I could not meander. I love to meander the backroads. I was on a mission to reach family in northern Ohio. So I pushed on.

It has been a good visit. I spent a week with my niece, Brittany, her husband, Trip and their toddler, Ward. I arrived to help this young family, while Ward is undergoing chemotherapy for childhood cancer. Well that sucks. Elsie and I got settled in to the spare bedroom and I met my grand nephew for the first time. And what a cutie he is.

Thomas the Train

I forgot how exhausting a one and half year old can be. I got up early and by the time I went to bed at night I was exhausted. As adults our main job is to entertain a young somewhat housebound toddler. It is hard to be out and about when one is immuno-compromised. I read books, put together puzzles, played numerous kinds of games and watched Thomas the Train many, many times. One knows when they have watched Thomas the Train one too many times. You know the characters by name, you know the plot and try not to roll your eyes when a little one asks to see the same movie three times in one day. 🙄

Brittany and I have had time to share our cancer stories and the stress that accompanies this diagnosis. There are a few clubs I wish I had never joined. The cancer club is definitely one of them. Cancer is a very personal diagnosis. The physical diagnosis is only a small part of the broad picture that cancer plays in someone’s life. Each diagnosis of cancer carries it’s own story. Each story is different. I believe that only those who have been slammed with this diagnosis can understand each other’s story on a different level than those who have not had that experience. We shared stories. Brittany asked questions about my diagnosis (breast cancer) and Jim’s. For those of you who are new to this page, Jim, my husband, died from metastasis of a salivary gland cancer over five years ago. All I can do is be honest with her. All I can do is support her and her husband’s process. And amid the stress, we can have fun and laugh and go out for a beer. The stress is not always visible but remains a presence even if lingering in the recesses of our daily lives.

Ward Rocking His Last Weekly Chemo

The good news is that Ward has completed ten weeks of weekly chemotherapy. He now moves on to chemo once every three weeks and will finish up in late May or early June. The story doesn’t stop there. He will continue to have CT scans at intervals for an undetermined time. Although cancer will recess into the further quiet reaches of the mind the stress revives with each doctor appointment or scan. All we can do is be there for each other.

Elsie and I moved into a lovely old hotel near my family. Grandma from Florida arrived today. She moved into the Porch house and we moved nearby. As it has sleeted and rained outside, we have been having a quiet day inside.  It is time to catch up and rest and plan.

I will be here for another week connecting with my sister, Ruth and continuing to support Brittany, Trip and Ward. Then I will begin to meander. I expect to be in northern New Jersey in early April to visit my other sister and plan time to visit friends as I travel in that direction. I did not expect to be in this part of the country, yet here I am. I want to make the best of it and it gives me the opportunity to visit and see places that I usually would not direct myself towards. Why???? Because I love the west and I miss it when I am gone. While the weather is cold and wet here in Ohio, I miss it even more. I will be heading west again sometime this spring. Those wide open spaces continue to call my name. How did a girl from Delaware end up calling the west home? Well this photo below may demonstrate a reason why.

Until I head west again, I will enjoy my time here in the east with family and friends. Life is just one big adventure.

Getting Ready to Move

I am in packing mode. Yes indeed, Miss Elsie and I are moving back into the RV on Wednesday. I am nesting. I am packing and sorting and rearranging. It is amazing how spread out one can become when they move into a place with space. Where did all this stuff come from and how did I get it all in my rig?

Pacific Beach

It will  be hard to leave the beach. I have really liked it here. Every day I walk to the bay, it is only two blocks away. About three times a week I walk the few miles to the ocean. It has been a tough existence (sic). The traveling gene is calling and I am heading out.

I have accomplished a lot in my three months here.

  • The dental work is done. Yay!!!! I have two new teeth and one is bionic 😏. Just kidding. I may be financially a little poorer, yet I have two shiny new teeth that I can show off.
  • Taxes are in process. They don’t need me to be present to finish them up.
  • All annual medical appointments are done. It is good to leave knowing I have a clean bill of health.
  • After many visits, chiropractic, massage, myofascial release, and acupuncture my back is feeling soooo….much better. I am seriously going to attempt to stay upright. No more falls are allowed, off my bike, off burros, or slipping on the sidewalk. Ay Yi Yi.
  • My Roadtrek has been checked out and inspected and fixed and is ready to roll.
  • My scooter has been tuned up and is back in my storage unit, ready for my next visit.
  • Thanks to the help of my therapist and the psychiatrist who orders my meds, I am emotionally feeling a bit more alive and ready to face the world. Thank gosh the sunlit days are getting longer, it helps my attitude so much.
  • I have had the opportunity to visit with friends. I have even made a few new ones. Sweet.
  • I finally found that document that was hiding in the dregs of my storage locker. Whew.

Shortly after Jim died, I started a scholarship in his name at Grossmont Community College. The accomplishment I feel strongest and happiest about, has to do with the scholarship. I donated the remaining amount of money needed to make this a perpetual scholarship. This scholarship will now continue indefinitely. Donations will still be greatly appreciated and the Go Fund Me site will remain on this blog page. It has taken the pressure off of me to raise the money needed. It feels very good to know that I have accomplished this very important goal. I have not done this alone. I have done this with the support of so many of you who gave either directly to the college or the Go Fund Me site. It was a team effort all the way. And I thank you.

I know there is more I could list here, these are the ones that come to mind at the present. Now my mental direction is shifting and getting ready to travel.

Ward

Where am I going? I am going to be driving across the southern part of the USA, and plan to be in Ohio by the 7th of March. I am going to help support my niece, Brittany and her husband, Trip with their son, one and half  year old, Ward. I posted about him back in December. Ward was diagnosed with a Wilm’s tumor in December. Since then he has had his right kidney and the tumor removed. He is now going through 21 weeks of chemotherapy. My sister, Ruth has been staying with them but she needs to head home for a short trip. I am going to be her replacement while she goes home. It is good that this young family has as much support as they can get.

I am going to enjoy meeting Ward. I have yet to meet him in a person. My personal hope for this time is that I might be able to relieve Brittany’s and Trip’s stress just a wee bit. This is what family and friends do for each other. We all help the best way we can. For me it has given me a direction when I get on-the-road.

I am off to pack some more. Stay tuned. The adventure continues.