Getting Ready to Glow

This past Friday I returned to San Diego. I am getting ready for the next part of the treatment for thyroid cancer. I needed to be in the city early for lab work.

Happily, at the moment I am parked south of town, on the bay. I love the convenience of the Bike the Bay Trail from here. It is a flat and often windy ride. I had plans to bike the whole thing but then I remember the horrible disrepair of the streets around Imperial Avenue and decided to bike the better section down and back. It is a great trail, mostly off-road and takes one around the south end of San Diego Bay and up The Strand to Coronado. It is a flat and windy ride and very pretty. On The Strand, the bay is on one side and the Pacific Ocean is on the other. As you arrive in Coronado there is a beautiful view of the Hotel Del Coronado, one of the grande dame of hotels built in the 1800s. This time I biked it without too much of a headwind, it made for a nice ride.

Tomorrow I leave here and move into my friends’ driveway for several days. On Wednesday I will drive to Kaiser, alone, take the pill and semi-isolate myself for approximately a week. My little home on wheels will become my sanctuary for this time.

sag wagon summer

Who knew my Roadtrek would ever be needed for this purpose. EmmyLou has been a sag wagon for a summer, driven friends to spend Easter with the family, and an art studio, and more. Now it is going to shelter me, continue to keep me from harm, and safe until this is over. She is definitely a wonder mobile.

I am a bit nervous and overwhelmed about this whole thing. I am putting this nuclear medicine into my body. It is a scary thing.

On the day I began a low iodine diet, I started reading a book titled Radium Girls. It is about the introduction of radium onto the world stage. Very shortly things started to go south for the women who worked in the watch factories where they painted radium onto the hands of the watches. I woke the morning of the diet and stopping my meds in sheer panic. I couldn’t do this. I mean, these women were dying from radium poisoning.

Thankfully I was staying across from Jim and Rhonda. I walked over there still panicking. They calmed me down, suggested that I return the book to the library (which I did) and then we talked it through. Jim reminds me a lot of my husband Jim. He was calm and insightful and asked the right questions. The final question he asked was “What would Jim say to me?” I looked at him and I said he would be compassionate and understanding and then say move ahead, get it done so we can move on with our lives. After all, there are adventures out there that are waiting.

It took a few more days for me to make a final decision to move forward. Once that was made, then I could enjoy my time in the desert with friends and sleep better at night.

Here are a few things I know. I choose not to die from cancer. After all the years working as a nurse, loving Jim through his disease, cancer is not kind. If I can, I want to remain cancer-free for the rest of my life. I know ultimately we don’t always have a choice yet there are some ways we can encourage that route not to occur.

Head and neck cancers come back. They are known for this. Not everyone experiences a second round but many do. Jim did. I choose to do everything within my knowledge to help prevent that from happening.

Once the radioactive pill is taken I know there are certain things I can do to help my body survive radiation treatment and I will diligently do all that is required, drink a lot of water, suck on hard sour lemon candies and stay on the low iodine diet for a few more days. I will be a very important part of the team that is assembled to help me through this. These people do not only include all the medical people, they also include my friends and family.

I am getting ready to glow and move forward. It is too bad I can’t become a superhero for a week and use this opportunity to fight for what is good and right. Oh wait a minute, I can do that without radioactive iodine.

My current mantra is:  “Get Through February”. Many of you ask what is next and although I know you are curious, it causes a bit of anxiety in me. Why? Because I don’t know. I need to get through the end of the month and the first few weeks in March and then, hopefully my world will open up a bit and I can explore what may be next. Currently, I need to get through February.

The desert helped me to feel strong physically, mentally and spiritually. I am in the best shape I have been in, for quite some time. For now, I want to take this forward and focus on today. Tomorrow can wait.

Getting ready to Glow.

 

 

 

 

Another Next Step

Two days ago I returned to San Diego from the desert, dragging my feet all the way. It was finally time for my appointment with the Radiologist to discuss the next step regarding the treatment for thyroid cancer. I have been very good to this point of compartmentalizing the whole issue. Now it is time to bring it back into focus again and deal with it.

I have received questions from some of my friends wondering when the next step would happen. This morning, along with my good friend, Cynthia, I was off to my Nuclear Medicine appointment. The Doctor was a very nice man and extremely patient as we reviewed the preparation for this upcoming procedure. The preparation appears to take more effort than the treatment with the radioactive iodine.

This morning the doctor and I discussed how I will live for the week of being radioactive. It looks like I will be able to stay in my rig. I will need to be mindful of being too close to people and avoid children and pregnant women. There are certain things that are part of RV living. One of them is managing my gray and black water (waste). After speaking with the Doctor this morning I am feeling a bit more comfortable regarding that management issue. It is not always easy not having a permanent home.

I am scheduled for treatment on February 19. Two weeks prior I start on a low iodine diet, stop my medication to begin to prepare my body to receive the RAI. I want to starve any thyroid tissue remaining in my body so it is eager to receive the RAI. The week after ingesting the RAI I will be radioactive. Unfortunately, I will not gain superpowers or become a Marvel Comics character. Shoot, wouldn’t that be cool?

It all sounds so logical and easy. I am dealing with emotions. At this appointment this morning, I discovered more emotions than I expected. I found I was weepy and a bit scared. I am worried. I have had cancer for a second time. I don’t care if it is a very treatable cancer, I still have had it. After Jim had head and neck cancer, I swore that it was the one type of cancer I never wanted (not that I want any other kind), and here I am with head and neck cancer. This appointment was in the hospital where Jim was treated and spent the last two weeks of his life. I did not present my best self this morning. Thank goodness for tissues.

After my appointment, I went for a bike ride, a long bike ride. Exercise helps gets my emotions back into some semblance of control and order. And now I am writing this. I am at the moment emotionally exhausted. I am working my way towards acceptance. Acceptance of treatment, Acceptance of needing to rely on friends since my family members live far away, Acceptance that I will need to be in and out of San Diego until the end of February. Staying put too long, makes me think I am missing something somewhere else. 😀 Always the intrepid traveler.

During my three days here I have successfully sold a desk and file cabinet from my storage locker. It was a bit of an adventure getting both pieces into the buyer’s SUV. With great persistence, we were able to get both pieces in, and off they went. Bernadette and Tom are a very nice couple and I feel like two more “Jim and Janet” items went off to a good home. Next, the kayaks. This will be another tale for another post.

Tomorrow I will return to the desert. I am looking forward to it. I am driving into a meetup with good friends that I see yearly, in the desert and sometimes other places as well. Sandy and Pat are such a delightful couple and I look forward to meeting them again. I am ready to hike. I am ready to relax and get on with a normal life for a little while. The one thing I do not want to do is wait. I want to get on with life until the middle of February. Winter is desert season and I am off to enjoy it, in all its glory.

Getting ready and getting moving.