Living With or Without Cancer-Getting Ready to Roll

“There’s always a story. It’s all stories, really. The sun coming up every day is a story. Everything’s got a story in it. Change the story, change the world.” – Terry Pratchett

Today I am changing my story. Instead of dying with cancer I am now living with cancer. It is possible that I am fooling myself and there is no cancer within me to live with. Well that is a cool thought.

Moores Cancer Center

Last Wednesday, with the support of Yvonne, we drove to the Moores Cancer Center at UCSD (University of California San Diego). I had a second opinion appointment with one of the primary head and neck surgeons. I define second opinions as a way to gather more information, so that I can be comfortable making a decision that will shape and define my life.

This whole complex of buildings that makes up the cancer center and other technologies are imposing as you drive in. The structures are big and impressive. There is one building that is dedicated to all things radiological speaking. The Novel Technology building is so new that the staff is not sure what it does. I was curious enough to do some on line research. It appears that it is a specialty that works with deep brain tumors and microscopic surgery. Interesting. It is good to be impressed by what I see.

My appointment went well. I met with Dr Brummond and his associates. They were kind and amazingly good listeners, especially the medical student that did the intake interview. Most of the information that I was given was not new, but that is what I wanted, a confirmation that my surgeon and endocrinologist were on the right track. I will have the other half of my thyroid removed upon my return from Africa (yes I am going). I did receive one new piece of information. This doctor feels that if the biopsy on the left thyroid comes back negative for cancer he believes I don’t need the radioactive iodine treatment. So I will gather that information into the ongoing puzzle of thyroid cancer.

Dr Brummond feels it will be OK to wait until my return in the fall to have the surgery to remove the other half of the thyroid. That is good news, really good news. I am relieved that this appointment is over and that I can begin to really plan for a trip of a lifetime. I imagine my friend and travel companion, Phyllis is glad to hear this too.

With the help of a therapist I am now getting ready to go into the final planning mode for this trip. Today I got my typhoid shot. All the other meds are gathered and ready to go. I am planning to leave San Diego this coming Monday and begin an amble east. Elsie says her bags are packed as well. I am daring to allow myself to get excited without getting overwhelmed. Living with cancer allows me to dare, to get excited, to dream. I was already getting weary of the feeling of dread that has been hanging over me. As I take each step towards Africa, the dread will disappear more and more.

My life is too short to be fearful and experience dread. That is a hard way to live. I would rather live hopefully and with a little or a lot of joy, depending on the day. These are always personal choices we all have to make every single day of our lives. Yes even you, dear reader are included here. Sometime the choice to live with hope is easy. Other days well we all have to dig a bit deeper to find that place. And so dig I shall.

Getting to Roll…New Jersey here I come….AFRICA here I come.

 

The Date-Surgery is Scheduled

A little over a week ago I got the call from the surgery scheduling department. I am going for thyroid surgery, first case of the day, April 5. That sounds so easy to say. It gets put on my calendar. I still feel strongly this is the right thing to do and yet…..

I am nervous. As soon as I got the date, seriously, within twenty four hours, I was down with a cold. I have rarely been sick, despite healing from breast cancer, Jim’s death from cancer, selling the house and other such events that show up in my life. Yet the day after being given the date for this upcoming surgery I get sick. What the heck?

This is a big leap of faith. Faith that I have chosen the right course of action. Faith in myself. Faith in my doctors. Faith in the system. Faith in just about everything. Here is what I know, I feel strongly that this is the correct course of action. That has not wavered. I really like my surgeon. He is kind and strong and competent and treats me like an intelligent human being. This is a good thing. I also like my endocrinologist. He is another good man who has never said the words…”there is no need to worry”. I asked him not to ever say those words after I first met him and he never has. He is also knowledgable and competent and compassionate. I feel like we are a team.

I am getting my alternative healing team on board as well. I want to go into surgery as healthy and strong as I can be. It is time to book appointments for massages (Beth), acupuncture (Gayle) and myofascial release (Kelly). My background is in holistic health education-that is what my masters says-so I want a complete and whole team to help me go into surgery and heal in record time after surgery. It is a commitment I make so that I can be back into my life fully as soon as I can.

One recovers from colds. I am in the recovery phase. I am glad to be out and about and seeing the world at large, after lingering on the comfy chair in my friend Phyllis’s condo, watching Marvel Comic movies and sniffling and sleeping away five days of my life. Thor is still one of my all time favorites.

The good part is that Phyllis and I have a huge handle on our upcoming trip to Africa this summer. Whoo, planning takes time. Despite my sniffling and sneezing we are down to the last few reservations. Africa is on the radar. It certainly gives me something to look forward to. Now it is time to get down to reading about South Africa and Kenya. I need to learn Lightroom (I just subscribed). It is time to delve more into my camera and find more magic in the camera body and it’s lenses. Ooh and I get to go shopping.

First stop: Victoria Falls

Here is something I have learned about myself over the last many years. I am not fond of planning holidays. Jim always had to sit me down and firm up plans after days of putting it off. I love to travel. I am not a big fan of planning. And…I used to be a tour manager. What? How does that work?  I don’t know. I actually enjoyed putting together a tour. The more I focused on the planning the smoother the tour went.

I tend to be lazy. My traveling in a mobile home, my RV, has given me the ability to decide at the last minute. What direction am I heading? Who or what do I want to see? Does that campground look good? How about a road into the National Forest or BLM? I find this lifestyle lends itself to last minute decisions.

For now, I am once again stationary in San Diego. I have a great support team of friends around me. Even though I am stubborn and think I can “do it on my own”, I know that I will reach out to all these people who have supported me without question over the past six years and longer. I am glad they are around. I am glad they understand my stubbornness and show up any way.

And then there are those of you who are far away or who I have never met. With all the support known and unknown, I am ready to walk forward to April 5. And..I will come out the other side ready to travel east.

Always Moving Forward.