Tag Archives: breathing

Oh No, The Check Engine Light is On!!!

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One thing that, I believe, every camper rues is when the “check engine” light lights up on the dashboard. What? Why is this happening? Oh no, can I make it somewhere to have it fixed? Oh no, what about my current trip? Oh no!!!

After spending two relaxing and fun weeks with friends in Florida, the check engine light lit up as we traveled north to another hot spring, to camp, bike, and kayak. OH NO! What to do?

  • Breathe, I must first and foremost remember to take a few deep breaths and relax. Life is not over as I know it and it will work out.
  • Coachnet is my Roadside Assist. After breathing I called them and once they made sure I was somewhere safe they began to help me figure out the best course of action. In this case, they gave me some excellent information. If the check engine light is solid yellow, I can drive on it and it will not automatically go into limp mode after so many starts. Well, that is good to know. They also would call me back the following morning to tell me who they found to look at the rig. Thank you Mercedes Benz of Jacksonville. Whew.
  • Call my friends and tell them I am delayed due to all of the above. It is good to know that they would have come back to help me out if I had needed assistance. It helps to know someone has my back.
  • Go to Auto Zone and ask them to check the codes. Did you know they do that for free? I did not know this. Now I do.
  • Notify my sister, who I would be seeing at the end of the camping week, that there is a glitch in the plans. Ruth was willing to come to pick me up in Jacksonville if necessary. That is very helpful and it is what family does for each other.
  • Drive carefully to the campground and park EmmyLou for the five days we are there.
  • Have fun with my friends.
  • Breathe.

Today, Monday I am at Mercedes Benz waiting patiently. The diagnosis? I need to replace the particulate filter. Don’t ask me too much about this. I do know it is part of the emissions and because it is under an extended warranty, I do not have to pay for it, Yay!!!

Mercedes treats its customers very well. This particular service center has a complimentary breakfast and lunch cafe. How cool is that? After I checked in I had a made-to-order omelet and began to wait. The staff here is helpful and knowledgeable. I am in good hands.

Here I am, breathing and writing and waiting. I will be out of Mercedes in a few hours and continue on my way north. I am grateful that EmmyLou is in good hands. I am thankful it is an easy fix.

I am overly thankful for Missy and Dan and my sister, Ruth and Joe, who were so helpful and supportive. I am also thankful for Tissa and Ed (extended family), who let me park my rig in their driveway for the weekend. It is so good to have so many people that love me and support me.

Today I am thankful.

Easter, Breathing, The Power of Prayer

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I am not a religious person. I go to church once in a great while when it calls to me. I have faith but usually not religion. Does that make sense?

St Pauls cathedral

Right after Jim died I attended Easter services at St Paul Episcopal Cathedral in San Diego. It was an event. The music resounded through this church. The procession in was awe inspiring. It was a welcoming and holy place. The message I recieved there was of value to me and personal. It was something I could hold dear when I was grieving so intently.

I have attended First Presbyterian Church in Granville, Ohio to hear my niece’s husband preach. He is good.

Because I am an infrequent attendee of any church , these moments sitting in a holy place brings extra value into my life. Churches are quiet and holy and supports my spiritualness.

This morning I was listening to NPR Weekend Edition with Scott Simon. I wanted to share with you, readers, some of what he said at the end of the program.

“This is a weekend that includes Passover, Easter Sunday, and the continuation of Ramadan. Holidays about rescue, renewal, and reflection. Stories about the parting of seas, for a people to escape slavery; a great soul rising; and fasting and long nights of prayer to remind ourselves of the preciousness of life.

Sarah Sager, a Cantor in Beachwood, Ohio, told us this confluence of holy days, “represents the right of every human being to be free. For three-thousand years we have been observing this holiday with the same vision. We will continue to do so until the dream is realized. Somehow, it shouldn’t be so hard and rare.”

Imam Makram Nu’man El-Amin in Minneapolis told us, “I choose not to see this as a coincidence, but a sign that all these faiths overlap. We bring multitudes around the globe together in acts of prayers this weekend for the common good of all peoples. This is especially important in a time of conflicts and social justice concerns.”

This description helps me to more fully understand the meaning of this time. Easter is celebrated around the world. It is celebrated in many different ways. Imagine the power of all those prayers It truly is a holy and powerful time. It is about people of faith and those of us who flounder. It is about all of us.

Continuuing with Weekend Edtition Scott Simon ended with this poem.

And Sister Margaret Guider of the Boston College School of Theology and Ministry, sent us a poem that reads in part:

“The convergence of these sacred days
should serve as a collective reminder, 
that the prophetic heritage
of our respective faith traditions, whether adhered to or not
in the ways of our ancestors, continues to permeate the air
which the human family breathes, 
of freedom, love and peace,
the life-giving breath of the Holy One. 

Yet, many of us, throughout the year, 
breathe through our mouths, 
while holding our noses. 

In doing so, we defend ourselves from the suffocating air of 
bondage, hatred and violence 
that surrounds us. 

However, in doing so, 
we also close ourselves off 
from any opportunity of
smelling the scents of 
justice, hope and compassion 
that also arouse conscience, 
giving rise to courage, and resiliency. 
Perhaps these holy days
will provide us with an opportunity to open ourselves to be moved
Christians, East and West, 
Muslims, Shia and Sunni, 
and Jews, Orthodox and Reformed, 
to breathe in 
the scents of the sacred – of freedom, love and peace,
that we are called to breathe out –
Not only on special days,
But every day.”

Breath and Breathing have been a large focus of my life in the past two years. If I examine it, breathing has been an important part of my life since I was born. I have practiced yoga for over thirty years. Breath is so much a part of the practice. It is a very important part of yoga. Conscious breathing is a part of my life for some moments of every day. When I heard this poem read this morning I thought, “ah another reminder of breath and breathing and its many facets of importance in my life. We all breathe together, every moment of our existence on this earth. Breathing reminds me of the sacred and the power of all those prayers to transform and change.

Sunday I am going to church. I am attending my friends’ church. I was invited and I decided to go. I love the music and who knows. maybe I will once again receive a message for myself to carry me forward in growth and breath for another year.

I have already received one message from Weekend Edition this morning. Going to church on Easter Sunday is one more way of reminding me of the sacred and holiness in myself and all human-kind.

Remember to celebrate this holy day however you choose and truly remember to breathe in as well as out. This is a day where we are all one people.

Happy Easter!

Conversational Narcissism

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“We have two ears and one mouth so that we can listen twice as much as we speak.”                      Epictetus

Sunday I took myself out for a late breakfast at a restaurant near where I am camped in San Diego County. The Trails is becoming a favorite of mine. The menu is good and even though it is often crowded and there is a wait, as a single I get to sit at the first come first serve counter. I love sitting there. I never know who is going to be sitting next to me.

The first time I went I met a young man who shared with me all of his favorites on the menu. We had a delightful conversation. Since then I have seen him again. As I walked in he was walking out. Yesterday I met Dan, an older man, an author, and quite the conversationalist. I spent almost two hours chatting with him, learning about his unique and interesting life. For two whole hours, I left my cell phone ignored on the counter, and when it did ring I simply set it to message. I don’t do that often enough these days. It is definitely something I would like to do again and a bit more often.

Lately, I have had some sites cross my Facebook page regarding the topic of Conversational Narcissism. When I reposted it I was amazed at the responses I received. It appears many of us saw a little bit of ourselves in the related post: The Mistake I Made With My Grieving Friend. This article and further articles I have researched on this topic have made me very aware of my human fallacy when attempting to support and listen to my friends and others.

“Conversational Narcissism was coined by sociologist Charles Derber and describes the tendency to turn a conversation back to yourself. Conversational narcissists tend to keep the focus on themselves, so you’re getting attention but not giving any away. It invalidates the other person and what they’re trying to share. The problem is, talking about ourselves is natural, so it’s hard to notice when you’re overdoing it.” (Marissa Lalibert)

I have experienced this with Jim’s death, my own experiences with cancer and currently with the loss of Elsie the Cat. Many times the conversation was turned around to the person who was attempting to listen and support me. There are times that this made me feel unacknowledged and uncomfortable. Never, please never tell someone to move on. Need I say more.

Part of being human is recognizing my own frailties and learning how to change and grow from this recognition. I recognize that I have also been the one turning the conversation to myself. I hope that it happens less now. I am more aware of this conversational tendency and I can catch myself, take a deep breath and turn the conversation back to the person who is needing my support and love.

In my twenties and thirties, I studied medicine and spirituality with the Native American culture. I valued the “Talking Stick”. The Talking Stick is a tool used in many Native American traditions when a council is called. It allows all council members to present their point of view. It is passed from person to person as they speak and only the person holding the stick is allowed to talk during that time period. Using an object, any object is a visible reminder to those of us not holding the stick to be quiet and listen, really listen. The person holding the stick is able to complete a thought or idea. The speaker feels his opinion is respected and valued and considered.

The Society of Friends, more commonly known as The Quakers also practice this art of listening in their Silent Meetings for Worship. “During worship, a message may come to us. Friends have found that messages may be for our personal reflection or for sharing on another occasion. Or they may be led to stand and speak. Friends value spoken messages that come from the heart and are prompted by the Spirit, and we also value the silence we share together. Following a spoken message, we return to the silence to examine ourselves in the Light of that message. Meeting for worship ends when one Friend, designated in advance, shakes hands with his or her neighbors. Then everyone shakes hands. No two meetings are ever the same.”

Back to Dan at the restaurant on Sunday. He was a delightful man with a very interesting past. The longer I sat there, I realized he never asked me anything about myself. For almost two full hours Dan spoke of himself and his life experiences. Dan never even asked me my name. Although I enjoyed hearing of his life and the history of Los Angeles, where he grew up, and what he had achieved in his life, he never once asked me about myself. What was I doing there? Where did I live? The usual conversation openers when people meet for the first time were not present.

In certain circumstances, maybe Conversational Narcissism is OK. I learned a lot from Dan. He was a storyteller and wove the stories of his life in an interesting and ear-catching way. I had a delightful two-hour conversation with him. I did not feel devalued or left out. Even recognizing that he never asked me anything about myself, the two hours were delightful. I had no expectations just a good breakfast companion.

I also think that what we see as a one-sided conversation, maybe contributed to loneliness. Dan lived alone, I live alone. Sometimes when I am around others I will tend to talk more than when I shared my life with Jim and even Miss Elsie the Cat. Yes, I do get tired of my own company. Yes, there are ideas I want to share. I do try to catch myself when I feel like I am talking too much. I believe I do better at this today than when I was younger.

I am sitting in a coffee house as I write this. My ears are a little more tuned into conversations around me. The art of conversation is hard. Unless we have taken classes in the art of conversation, all of us struggle just a little with the whole idea of communicating with others. I was not taught how to converse as I was growing up. You just did it. Sometimes it was successful and others, well, not so much.

As we approach the holiday and we gather with family and friends, our conversational awareness will be tested. The family often is the ultimate test of conversation. They can be the most critical and the most supportive. As I approach Christmas day I hope that I can remember to take a deep breath and truly listen to the joy of others in the celebration of this day.

 

The Flight of the Butterfly

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I am slowly making my way to San Diego.

Roadtreks at a Rally

I had a wonderful couple weeks on the central coast of California. The Roadtrek Rally was a great success. It was a personal success for me. I met wonderful people. When the rally was over I left with two of the women, Mandy and Ann and met up with a third Roadtreker, Don. We camped for four nights near Morro Bay. Every day was beautiful and fun. We hiked and taked and talked and laughed. We got to know each other.  I have new friends to go on adventures with.

I gradually am working my way into San Diego. I am a bit nervous about my upcoming appointment at the Moores Cancer Center. Instead of making my way all the way there, today, I am camped for one more night on the ocean. My view is great and I can fall asleep to the sounds of the Pacific crashing below my campsite. 

Four Roadtreks at Morro Bay

The last few days I have been in Camarillo, CA staying with my good friends, Mary Jane and Jeff. Elsie and I camped in the driveway. Jeff and I are doing fiberglass repair work on my side steps. I sort of met one too many sidewalks. It will take a while to complete, yet I walk away with the knowledge that I will be able to complete the repair on my own. It is looking good at the moment. 

For the past two days I have been sitting in the middle of the Monarch Butterfly migration. It has been amazing. As soon as it warms up they are flying, up the driveway, over the roof and on north. I have heard of this phenomena yet this is the first time I have experienced it. I am not talking of one or two butterflies, I am talking more like hundreds. I finally left them behind when I arrived at the ocean, near Malibu today.

“The annual monarch life cycle and migration begins at the monarchs’ overwintering grounds in Mexico (for the eastern population) and the central to southern California coastal region (for the western population). Around March, the overwintering monarchs begin their journey north. Once migration begins, monarchs become sexually mature and mate. The females begin their search for milkweed plants on which to lay eggs. After mating and egg-laying, the adult butterflies die and the northward migration is continued by their offspring. It takes three to five generations to repopulate the rest of the United States and southern Canada until the final generation of the year hatches and does the return journey to the overwintering grounds.

The monarch migration is one of the greatest phenomena in the natural world. Monarchs know the correct direction to migrate even though the individuals that migrate have never made the journey before. They follow an internal “compass” that points them in the right direction each spring and fall. A single monarch can travel hundreds or even thousands of miles.”

I admire their perseverance. They cross ten lane freeways, mountains, Los Angeles and they still continue to fly. If it is not warm enough they lay on the ground until the sun or weather heats them up enough to fly. 

I feel honored to have witnessed this once in my life. It was amazing. I rode my bicycle to a preserve near my friends home. The butterflies were hanging on the wild mustard. It was a sight I will not soon forget. It was hard to drive because I knew that my rig was hitting them. I kept telling them to fly higher. It is hard when the industry meets nature. Often nature loses.

Tomorrow it is on to San Diego. I will remember to breath. I am hoping for a good outcome from this second opinion. As I weave my way through these next few days I will remember the amazing Monarchs and hope they help me smile.

 

Ongoing Experience of a Cancer Diagnosis-My Niece Eloquent Words

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About a month ago my niece, Brittany posted her thoughts and feeling regarding the end of her son’s (Ward) chemotherapy, the removal of the port and what it feel like to be a family that has survived the initial phase of cancer treatment, in a way too young boy (diagnosed at 1 1/2 years of age). I wanted to share it with you because it is poignant and real. I get this as a cancer survivor. I get this as someone who saw their husband die from the disease. I get it and yet I don’t. Each of our experiences with this diagnosis are just a wee bit different. Here is what I know-the diagnosis of cancer sucks. Plain and simple. Yet, for those of us who survive we each must find a way to move on, figure out a new norm and try to remember to live and breath every day.

Brittany’s Caring Bridge Note.

“And just like he rang the bell, chemotherapy ended, a scan was officially clear and all cheered.

Except me.

Why?

I want to breathe out, I have been holding my breath since December 8, 2017 at 10:30 a.m.

I thought this was THE end.  But it’s not.  It is simply AN end.  This is the beginning for a new phase of cancer, living scan to scan.

His name is off the prayer list, the cards won’t come anymore, we won’t see our doctors weekly, and the average friend thinks we are done, praise God.  The only thing that will keep coming is advice, a blessing and a curse.

There is no back to normal, we live now as a family traumatized by cancer.

The life we used to live meant we’d be planning a vacation and buying plane tickets, but now I count how many scans are between us and that trip, and how many times do we have to all hold our breath and hope to hear the words, “the scan is clear” again.

The life we used to live included parties, lots of summer parties.  But now parties make me anxious. Who is coming?  Are they sick? Do they know he had cancer?  Will they ask the hard questions?  Will I be triggered into anxiety by something new I don’t even know will trigger me?

The life we used to live included trust.  Now I ask do I trust his doctors?  Do I trust my decision-making?  Do I trust we can keep living?  Do I trust that the floor won’t crumble beneath us?

December to May we lived in triage.

We woke up, put on our pants, took a deep breath and did the emergency work the doctors guided us to do.  We showed up on time, we held him, we medicated him, we cleaned up the messes, we hugged each other, we cried when necessary, and we loved harder than we ever loved before.

But the triage phase is over.  We have paused.  We look back.  We look forward. We look inside.

When will we breathe out?

It may never be all at once.  But we will slowly exhale over the years with each new day, each giggle, each birthday, and each milestone.  We will slowly exhale each clear scan and each year further from cancer.

Hope and love will remind us to breathe in the meantime.”